KICKBACK 31 18/7/99 ....part of

MEWL Newsletter Summer 1999

Greetings once again, ...........(newsletter contents at bottom of page)

Many thanks to all those who responded to the last newsletter along with kind words. Well, I've gone into overdrive this month to get this issue out on time (arm bands and editors visor on, cigar hanging out of side of mouth and typewriter bell going ten to the dozen).

The other day I happened to call on a distant friend, who in passing asked what the Blue ribbon* I had pinned to my jacket was for? Feeling somewhat defensive, as one usually does at having to describe what ME is all about in a few words, often receiving a blank look. Imagine my surprise when she said "that's what I'm suffering from!" apparently she'd been ill for many years but had never been diagnosed. Last year she became very unwell after catching Flue and was diagnosed as suffering from ME. An interesting conversation ensued, exchanging details of our similar symptoms, like feeling physically and mentally exhausted (shattered) after very little exertion, and 'dizzy' trembling limbs. Things that would mean little or make no sense to a non-sufferer.

The conversation went on as is quite usual to what if any had helped each others condition. She mentioned that Yoga had been very useful, that any amount of 'normal' exercise made her worse. And she was concerned about poor posture, sitting like a sack of potatoes (I have a legitimate fear of getting a curved back for the same reason). I've heard many sufferers recommend Yoga so I must give it a try. Apparently it doesn't have to be a special class as all Yoga is gentle and very relaxing. I mentioned the dreaded swear words (Cold Baths') and amazingly she was interested in giving them a go. Bit of a cheat really as although I swear by them I tend to only do them when I'm feeling particularly wretched. I stopped doing them ]ast year after simultaneously having pneumonia (not caused by the cold baths). And recently got back on them whilst in a relapse. It's my weapon of last resort!

Both of the above would obviously be of little use to those who are very unwell. Traveling to take part in a yoga class, and the regular effort of taking a 'cool' bath on top of normal ablutions would be prohibitive. Perhaps some do Yoga at home? Do you practice something that helps with your symptoms? Let us know! Interestingly I have spoken to her since and she said she finds the Cold Baths a great help. Amazing?

*Blue Ribbon Appeal for ME (BRAME) started by Tanya Harrison. (PS I have some spare ribbons)

CONTENTS

1) List of BBS Information articles. 2) Members profile (Tundy)

3) Bibs and Bobs. 4) Ampligen in the UK.

5) Chronic Fatigue comes out of the closet (Canadian Medical Journal)

6) Persistent Virus Disease Research Foundation research programme (part)

7) Time to put the Exercise Cure to rest by Dr Betty Dowsett.(Interaction

back to home page ......................................................................................................................Aspen Associates

............................................................................................................................................not an me item but a good cause